Cameron's parents, Racheal and Nick Bartle, are now working to purchase a special device, a CoaguChek machine, that will help them monitor his warfarin levels; a drug he takes to help reduce the formation of blood clots.
"It checks his INR [international normalised ratio] levels - levels of coagulation in the blood after having the warfarin every morning. It's a real fine line to get it right," Mrs Bartle said.
A CoaguChek machine costs about $700 and children with a heart defect normally receive one from the Heart Kids NZ charity about 18 months after surgery.
A family friend of the Bartles', Rachel Lange, is taking part in a marathon later this year and decided she would fundraise to help purchase a machine for Cameron earlier.
She has set up a Givealittle page to help not only Cameron, but other heart kids who will receive a device from any extra money she raises.
Mrs Bartle said: "There are lots of heart families that we've met on our journey and it's just to help them out as well - to set up a little fund [to buy the machines]."
Mrs Bartle said the past two years had been at times a real struggle for their family, which also includes 4-year-old son Cory.
"It's so expensive having a sick child. But he's a real cool little kid. Not because he's ours, but he just has a really neat nature. Considering what he's been through, he's just phenomenal - nothing fazes him."
To donate, visit:
• www.givealittle.co.nz/cause/heartmachineforcameron
Heart kids
• 12 babies are born in New Zealand with a heart defect every week.
• 450 open heart surgeries on children take place every year.
• 70% of all heart surgeries involve stopping the child's heart.
• 1000 children a year are treated at Auckland's Paediatric Cardiac Unit.
- Source: Heart Kids NZ