The national organ donation service at Auckland District Health Board has been put on notice by an official-information watchdog after it was caught out deleting public records.
Organ donation campaigner Andy Tookey, whose 12-year-old daughter Katie is expected to need a liver transplant eventually to correct a rare birth defect, asked Organ Donation NZ for a copy of a computer presentation on a national audit of deaths in intensive care units.
He hoped it might shed light on matters such as the extent to which families of potential posthumous donors were not asked about organ donation.
He has been pushing for changes to New Zealand's organ donation system, with the aim of increasing the number of donors, since his daughter's diagnosis with a liver disorder when she was a baby. He believes weaknesses in New Zealand's system are why the country's annual organ donation rate -- fewer than 10 donors per million people -- is far lower than in some European countries.
The health board refused his request under the Official Information Act on grounds of dead people's privacy, an obligation of confidentiality to the ICUs supplying the information, and because a statistical summary would be made public "soon", more than four months after the request last November.