The status had a picture attached that read "there's a difference between saying goodbye and letting go".
"Goodbye is I'll see you again when I'm ready to hold your hand and when you're ready to hold mine. Letting go is I'll miss your hand, I realised it's not mine to hold and I will never hold it again."
Paul Goodfellow, who survived meningococcal disease, told 7 News the vaccine needs to be more affordable.
"It's just horrible, it shouldn't happen," he said.
"There's a medication, there's something you can have for it, so I really think that it should be available to anyone and everyone."
Doctors say vaccinations should begin when a baby is 2 months old but Jordan's family, who couldn't afford the $350 cost, said they didn't know how deadly the disease could be.
The family has set up a GoFundMe to help pay funeral costs.
In New Zealand, several vaccines are available against different groups of meningococcal disease – A, C, Y and W135. The vaccines are only free to people who either don't have a spleen or whose spleen isn't working, but they're available to buy through general practices.
District health boards may also pay for meningococcal disease immunisation for public health purposes such as a disease outbreak.
Meningococcal bacteria are difficult to catch as they don't live long outside the body. They pass from one person to another through secretions from the nose or throat, during close or prolonged contact, for example:
• By coughing or sneezing (by droplet spread) • By kissing • By sharing eating or drinking utensils, toothbrushes, pacifiers. • Basic steps like covering your nose or mouth when you sneeze or cough, and washing and drying your hands can help reduce the chance of spreading the bacteria that can cause illness.
Who is most at risk?
Anyone can get meningococcal disease, but it is more common in:
• Babies and young children • Teenagers and young adults • People with a weak immune system – for example those having chemotherapy treatment or have HIV • Close contacts of meningococcal disease cases (e.g. same household) • Those having other respiratory infections (e.g. flu) • People living in shared accommodation such as halls of residence (university), boarding school and hostels • Those living in overcrowded housing • Those exposed to tobacco smoke.