"I'm hoping that people realise how much some people have to pay for drugs that could potentially help save them or at least prolong their life for a long time."
Andrew Speir's friends set up a Givealittle page to fundraise $40,000 for his first round of Avastin.
They booked spots on six digital billboards in Auckland - and one in Christchurch - to promote the Givealittle page.
The billboards are Star Wars themed with a photo of Andrew and the line 'Andrew versus Cancer - a new drug. Help Andrew fund his 40-thousand dollar Avastin treatment'.
When the billboards started appearing last week, the Givealittle page fundraising leapt thousands of dollars to almost $30,000.
"I didn't really think it would get that much attention but it has which is really cool I've got a friend who is able to do that, I'm a lucky guy," he said.
"The burden's on my parents and it's just been so nice that they're not going to take a financial hit on this. To see that they don't have to dig into their savings has made me happy."
Speir was working in London when he received the shock diagnosis that he had an aggressive form of bowel cancer, and returned to New Zealand to be close to his family.
The Cancer Society's medical director, Dr Chris Jackson, said he hears stories every week about patients who can't get access to drugs that are not funded.
"I've never seen patients in New Zealand having billboards to raise money for their cancer treatments before but I think it's fair to say many New Zealanders are going through extraordinary measures to raise money for access to medicines they can't access through the usual means, through Pharmac or medical insurance," Dr Jackson said.
Dr Jackson said Avastin is funded in Australia where it is commonly prescribed to help treat some forms of cancer.
He said the gap between what's funded here and overseas is getting bigger, and patient advocacy groups feel there is an imbalance of funding for drugs that give patients a little more time as opposed to game-changers.
"It's important to note that when Pharmac says things like it only adds a small amount, that small amount of time is important to people. With a few additional months of life people get more time with their kids, more time with their partner, their friends and family, and they get to so some special things."
He said there needs to be more clarity around the criteria for funding.
"One tool that is used internationally is the ESMO Magnitude of Clinical Benefit Scale which is kind of like a drug scorecard and it gives a drug a rating from one to five as to how good it is. I think if we used a drug scorecard like that in New Zealand it might help give a lot of clarity to this discussion."
The billboards featuring Andrew Speir versus Cancer will continue to pop up and any funds above the $40,000 will go towards a second round of Avastin if his doctor decides that would be beneficial.
-RNZ
