At the age of 10, Charles Tareha was diagnosed with a cancer so rare only 185 people worldwide had shared the same disease.
Doctors started talking palliative care almost immediately.
And while the courageous youngster, also known as Kayah, was unable to show the world he could survive small blue-cell cancer like he once said he would, Charles managed to squeeze in another three-and-a-half years of living before succumbing to the disease late last week.
At a funeral to honour the 13-year-old on Monday, his papa Don said Charles would have hated the adult tears on display.
"Tears for an inevitability you came to terms with long ago would have embarrassed you," he said. "But we cannot say goodbye without tears, so close your eyes and ears, Kayah, and let us have our grief.