Which is why the family were so pleased to spend a week at the Ronald McDonald Family Retreat at Ngongotaha last year, according to mum Bex. She, husband Jonno, Jaya and toddler Reeve stayed in the retreat last spring.
The two lakeside retreats are funded by the annual Supper Club fundraiser, which is taking place on Wednesday.For the Robinson family, it was a much needed chance at "normality".
"It was amazing, absolutely amazing. We haven't been able to travel outside of New Zealand."
In days gone by the family wouldn't have ventured from their New Plymouth home to Hawera because of the need to be near a hospital.
Jaya was diagnosed with bilary atresia when she was 11 weeks old - although her mum says she was sick "basically from when she was born".
"She was my first baby. She never slept, never ate properly. It was just unbelievable."
At the six-week appointment her yellow colour was put down to jaundice and Mrs Robinson was told to put her daughter in the sun.
It was a Plunket nurse who overrode the doctor's decision when Jaya was 9 weeks, which eventually led to Jaya's diagnosis.
"It was just horrendous being sent to the unknown."
Jaya's wait for a transplant was shortened when a good friend decided to donate part of their liver.
"We were lucky."
She said without that, they would have faced an uncertain wait on the transplant list. How long that would have taken is something they don't think about.
"You just don't go there. You wait and hope and pray and it depends on the severity."
Prior to the transplant the family were in and out of hospital with liver infections.
"If we weren't in hospital we were having bloods every week or twice a week.
"It wasn't much of a break."
Mrs Robinson said even after the transplant the family still had to be careful for about six months or a year.
"She didn't start kindy at 3. We didn't go far at all."
After the first year post transplant, problems with the bile duct meant Jaya had to have a tube into her liver for about three and a half years.
"It was constant trips to Starship Hospital every six weeks."
Mrs Robinson said Jaya was now doing well and managing without the tube.
"You take it while it is good."
She said the family's week at the retreat was fantastic.
"For us to all be together in a safe environment was just amazing."
Being on one income made holidays difficult, especially given they never knew when they'd need medical treatment.
"A trip away was to Auckland and that was only for medical stuff.
"[Rotorua] was awesome, we even took my sister and her boy. It was just so calming and relaxing, no stress."
Mrs Robinson said the family was blown away by the response they got everywhere they went when people found out why they were in Rotorua.
The kids loved playing on the Nintendo Wii, while "we loved the view".
A highlight for the family was the luge - something Jaya wouldn't have been able to do if she still had the tube in.
Mrs Robinson said she was so grateful to the community for its support of Supper Club, which allowed the retreat to operate.
Ronald McDonald House Charities chief executive Wayne Howett said the retreats were a great addition to the accommodation and support it provided to families while children were in hospital.
"In addition to these services our Ronald McDonald Family Retreat in Rotorua provides a welcome break from the world of medicine for our families. "
In 2016, 79 families stayed in the retreat.
"The maintenance and upkeep of such an amazing facility would not be possible without amazing events like the Rotorua Supper Club and Rotorua community."
