Rotorua Daily Post
  • Rotorua Daily Post home
  • Latest news
  • Business
  • Opinion
  • Lifestyle
  • Property
  • Sport
  • Video
  • Death notices
  • Classifieds

Subscriptions

  • Herald Premium
  • Viva Premium
  • The Listener
  • BusinessDesk

Sections

  • Latest news
  • On The Up
  • Business
  • Opinion
  • Lifestyle
    • All Lifestyle
    • Residential property listings
  • Property
    • All Property
    • Dairy farming
    • Sheep & beef farming
    • Horticulture
    • Animal health
    • Rural business
    • Rural life
    • Rural technology
  • Rural
  • Sport

Locations

  • Tauranga
  • Te Puke
  • Whakatāne
  • Rotorua
  • Tokoroa
  • Taupō & Tūrangi

Media

  • Video
  • Photo galleries
  • Today's Paper - E-Editions
  • Photo sales

Weather

  • Rotorua
  • Tauranga
  • Whakatāne
  • Tokoroa
  • Taupō

NZME Network

  • Advertise with NZME
  • OneRoof
  • Driven Car Guide
  • BusinessDesk
  • Newstalk ZB
  • Sunlive
  • ZM
  • The Hits
  • Coast
  • Radio Hauraki
  • The Alternative Commentary Collective
  • Gold
  • Flava
  • iHeart Radio
  • Hokonui
  • Radio Wanaka
  • iHeartCountry New Zealand
  • Restaurant Hub
  • NZME Events

SubscribeSign In

Advertisement
Advertise with NZME.
Home / Rotorua Daily Post

'Amazing' sufferer continues to smile

Shauni James
Shauni James
Rotorua Weekender reporter·Rotorua Daily Post·
20 Jun, 2016 11:01 PM3 mins to read

Subscribe to listen

Access to Herald Premium articles require a Premium subscription. Subscribe now to listen.
Already a subscriber?  

Listening to articles is free for open-access content—explore other articles or learn more about text-to-speech.
‌
Save
    Share this article
Rotorua's Maria Minnaard (left), who has motor neurone disease, with her friend and former carer Susie Thomas. Photo / Stephen Parker

Rotorua's Maria Minnaard (left), who has motor neurone disease, with her friend and former carer Susie Thomas. Photo / Stephen Parker

For Maria Minnaard, the first sign something was wrong was in 1979 when her son noticed she was dragging her foot.

Ms Minnaard uses a Lightwriter to communicate. Photo / Stephen Parker
Ms Minnaard uses a Lightwriter to communicate. Photo / Stephen Parker

She was diagnosed with motor neurone disease (MND) four years later. She says one of the worst things about the disease is not being able to talk.

"They [people] think I'm deaf and dumb," she said.

Ms Minnaard uses a Lightwriter to talk, which has some phrases programmed such as "Hello, how are you" and "thank you".

Advertisement
Advertise with NZME.
Advertisement
Advertise with NZME.

She also uses email and text messaging to stay in contact with friends and family.

Ms Minnaard does Reiki with some of her fellow Dutch friends, which she says helps both mentally and physically. She said when she laughed it eased the pain.

Her friend and previous carer Susie Thomas said because the disease offered itself in so many ways to different people it could be difficult to diagnose.

She said Ms Minnaard had a slow form of the disease, and so the symptoms were gradual.

Advertisement
Advertise with NZME.

Mrs Thomas said Ms Minnaard was "an amazing lady" to have a disability such as MND but still have a "huge" smile on her face.

"She commands an incredible amount of self respect and people love her."

Ms Minnaard, who turns 84 tomorrow, lost her speech 34 years ago - "a long time not being able to talk", Mrs Thomas said. She said Ms Minnaard was reliant on caregivers and was currently with the Enliven Rotorua service.

The home carers came to her house at 6.30am, sometimes did house work throughout the day, and were also there at midday and in the evening to help her eat and get ready for bed, Mrs Thomas said.

Discover more

Rotorua student on mission to beat cyberbullying

15 Jun 09:00 PM
Environment

Local air quality data available online

15 Jun 09:37 PM

Sleepless in Rotorua: The rise of insomnia and how to beat it

18 Jun 09:29 PM

Mrs Thomas said Motor Neurone Disease Global Awareness Day was important so people knew about the disease and how those with it were affected.

The early symptoms were what people needed to know about, as the initial signs could be subtle, she said.

She said helping those with the disease maintain their quality of life was important.

"I think people need to just be aware of anyone who is not as well off as they are, and put themselves in that situation and say 'how can I help?'"

It was also important people knew there were support systems, such as a field officer who was associated with the Bay of Plenty branch of the MND Association NZ, she said.

- Visit www.mnda.org.nz for more information on MND.

Advertisement
Advertise with NZME.

Motor neurone disease (MND):

• MND is the name given to a group of diseases that destroy the nerve cells which control your muscles and can affect anyone.
• With no nerves to activate them, muscles used to walk, talk, hug, hold, speak and eat gradually stop working.
• The most common type is amyotrophic lateral sclerosis (ALS).
• This year about 100 people in New Zealand will die from MND and 100 will be diagnosed.
• Most will die within two to four years.

Early symptoms:

• Stumbling due to weakness of the leg muscles.
• Difficulty holding objects due to weakness of the hand muscles.
• Slurring of speech or swallowing difficulties due to weakness of the tongue and throat muscles.
• Cramps and muscle twitching are also common.

Save
    Share this article

Latest from Rotorua Daily Post

Rotorua Daily Post

Gang leader guilty: Jury convicts Mongrel Mob president of Taupō motel murder

18 Sep 07:43 AM
Rotorua Daily Post

Police seek woman missing since Tuesday

18 Sep 05:27 AM
Rotorua Daily Post

Details of how 3-year-old was taken from childhood centre

18 Sep 05:15 AM

Sponsored

Kiwi campaign keeps on giving

07 Sep 12:00 PM
Advertisement
Advertise with NZME.

Latest from Rotorua Daily Post

Gang leader guilty: Jury convicts Mongrel Mob president of Taupō motel murder
Rotorua Daily Post

Gang leader guilty: Jury convicts Mongrel Mob president of Taupō motel murder

Ryan Woodford was shot dead in front of his partner and children in Taupō.

18 Sep 07:43 AM
Police seek woman missing since Tuesday
Rotorua Daily Post

Police seek woman missing since Tuesday

18 Sep 05:27 AM
Details of how 3-year-old was taken from childhood centre
Rotorua Daily Post

Details of how 3-year-old was taken from childhood centre

18 Sep 05:15 AM


Kiwi campaign keeps on giving
Sponsored

Kiwi campaign keeps on giving

07 Sep 12:00 PM
NZ Herald
  • About NZ Herald
  • Meet the journalists
  • Newsletters
  • Classifieds
  • Help & support
  • Contact us
  • House rules
  • Privacy Policy
  • Terms of use
  • Competition terms & conditions
  • Our use of AI
Subscriber Services
  • Rotorua Daily Post e-edition
  • Manage your print subscription
  • Manage your digital subscription
  • Subscribe to Herald Premium
  • Subscribe to the Rotorua Daily Post
  • Gift a subscription
  • Subscriber FAQs
  • Subscription terms & conditions
  • Promotions and subscriber benefits
NZME Network
  • Rotorua Daily Post
  • The New Zealand Herald
  • The Northland Age
  • The Northern Advocate
  • Waikato Herald
  • Bay of Plenty Times
  • Hawke's Bay Today
  • Whanganui Chronicle
  • Viva
  • NZ Listener
  • Newstalk ZB
  • BusinessDesk
  • OneRoof
  • Driven Car Guide
  • iHeart Radio
  • Restaurant Hub
NZME
  • About NZME
  • NZME careers
  • Advertise with NZME
  • Digital self-service advertising
  • Book your classified ad
  • Photo sales
  • NZME Events
  • © Copyright 2025 NZME Publishing Limited
TOP