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Home / Bay of Plenty Times

Martine Rolls: Taking invisible out of suffering

By Martine Rolls
Bay of Plenty Times·
18 Sep, 2013 02:00 AM4 mins to read

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Anna sees friends if she has the energy. "When I don't, you won't. You wouldn't recognise me.''

Anna sees friends if she has the energy. "When I don't, you won't. You wouldn't recognise me.''

When I was younger they called me lighthouse, ginger nut, stop sign and carrot top. One day, a classmate asked me if I did motocross. I didn't get it at first, then realised she was comparing my freckles to mud splashes. How original.

They said I was weird and I didn't fit in, but I was lucky because I had my health and inner strength. I pretended I didn't care. But this story is not about me. It's about something a beautiful local girl named Anna put on her Facebook page last week.

Although I'm not religious, what Anna wrote for Invisible Illness Week hit home. She shared it for all those people suffering invisibly. This is what she said:

"I was 17 and full of life. After overcoming a life of bullying and put-downs, my peers elected me to be their head girl.

"The students who used to thumb their nose at me and look at me like I was dirt were inviting me to parties and saying that I was an interesting and cool person. I didn't buy into it, but I was pleased to finally have enough confidence to stand in front of 1200 girls most mornings at assemblies and talk.

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"I tried to use my 'power' to help the little guy, and the bullied people. I attended the Youth Parliament in Wellington and gave a speech over live radio in the debating chamber. I was convinced I could make a difference as a politician, if not prime minister. Big things were ahead.

"But I was tired, very tired.

"One day, not long after finishing school for good, I came down with a terrible virus. I sweated, shook and felt like I was dying. And I never recovered.

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"After that day, I was a changed girl. I forced myself to go to university although I honestly do not know how I survived. I would sleep for four hours at night and feel like I was literally dying every moment of the day. I felt my energy drain away from me until I was like an empty gas pump that people were still trying to fill up from.

"I developed severe depression, severe anxiety, severe insomnia and a host of other physical ailments like constant sore throats, dizziness, nausea, tremors, weakness and debilitating fatigue.

"Eventually, after three years, I was diagnosed with chronic fatigue syndrome, depression and anxiety, and glandular fever. After dragging myself through a languages degree and a teaching diploma I was skin and bone and barely able to leave my bed.

"This eventually led to taking a truckload of medication which in turn caused a 70kg weight gain over 10 years. It also led to years of being almost bed-ridden, up to seven seizures a day and the most crippling mental illnesses I had ever encountered. My life was hell.

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"One of the worst things was that very few people ever saw how sick I really was. When I went out, I put on a smiling face. It's my natural personality, not a mask. I love people and respond to them. To them, my sickness could not be real because I did not look sick or act sick. I had several Christian friends tell me I needed to get my ass out of bed and down to church early on a Sunday morning to be healed and connect with God.

"I felt like crying out 'why don't you come and be God to me, come and visit me, come and pray for me, instead of judging me?' My relationship with God was closer than ever. I had hours to pray and to hang out with him but still people felt I needed to show up and be seen.

"I thank God for a wonderful husband and an understanding family, and those few precious friends who accepted me no matter what. I am a lot better but I still have a long way to go. I still sleep for 10-12 hours a day and I don't keep conventional hours. I work part-time when I feel able to, and love visiting friends and meeting with them when I have the energy.

"When I have the energy, you'll see me. I'm the reasonably normal-looking person. When I don't, you won't. You wouldn't recognise me.

"Thank you for reading this and helping me feel not so invisible any more.

"When you are weak, then He is strong."

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