A family which has begun dipping into its retirement savings to pay for their son's medical cannabis treatment has made an emotional plea to Government to make the drug more affordable and accessible.
Ollie Venables, 22, is autistic, intellectually disabled, and has mild spastic cerebral palsy. He is in near-constant pain and suffered from muscle spasms and other side effects while on previous medications.
His parents, Shelly and Brett Venables, are among a small group of New Zealanders who have successfully navigated the fraught process to obtaining one of the two legal cannabis medications on the market, a CBD oil made by Tilray.
But the Invercargill family say they have had to begin spending their Kiwisaver – which can be accessed on hardship grounds - to pay for the medication.
They are among hundreds of families who are lobbying Parliament on a law change which will decriminalise medical cannabis for some people. Most of those families say it does not go far enough. The Health Committee is now working on its report, which is due back at the end of July.
The law change before Parliament will eventually make medical cannabis more readily available and could reduce its cost, though the new regime is expected to take at least two years to implement.