I had an inquiry the other day as to whether there were provisions and safeguards for vulnerable youth over the age of 18 with Oranga Tamariki. The inquiry was about an individual with very high needs who was at risk with their guardian.
There aren't a lot of options, it is quite a gap. Hopefully the announcement of Transition Services through Oranga Tamariki supporting people between the ages of 18 to 25 will cover this.
I had phone call from a woman in Australia the other night. She told me she was a Kiwi with an Aussie husband who were planning to move back to Godzone, NZ.
"My husband has got motor neurone disease," she said. "I want to know how to start to set up supports for him in New Zealand.''
I sighed as I replied: "New Zealand Immigration has a range of eligibility criteria on health and disability and that no doubt motor neurone is one of the conditions that wouldn't allow him to become a resident and therefore he would most likely not receive any disability supports."
"Oh," she said glumly. "Would it make any difference that I'm pregnant?"
"Unfortunately not,'' I replied, equally glumly.
I have always been somewhat embarrassed about our immigration laws and the health and disability screening. There is an inconsistency – a gap - between the rhetoric of our overarching documents, such as the United Nations Convention on the Rights of Disabled People and the New Zealand Disability Strategy that claims that we ''value disabled people'', and the intolerance of banning disabled people immigrating to New Zealand. There's a gap in principles.
Another cavernous gap is between the support ACC offers someone with a disability because of an accident and what the rest of us get. This gap between ACC-funded disability supports and Ministry of Health-funded supports is eye watering. ACC supports are fast and gold plated. MOH supports are somewhat bleak in comparison.
Talk about the gender pay equity gap, but what about the pay equity gap between disabled and non-disabled people? Last week the Maxim Institute released a research paper, Creating Opportunities: Opening doors to employment for people with disabilities. It found that New Zealanders with disabilities earned just half of the average income of people without disabilities.
The research shone a spotlight on a blind woman who was getting $2.30 per hour for untangling headphones. She worked for an organisation which has minimum wage exemptions to provide work for people with disabilities.
The issue is somewhat complex as the research pointed out. Disability-and-employment has diverse and broad issues that need a variety of options so we avoid the gaps. One issue that needs clarity is whether you are providing disabled people with employment opportunities or community participation and day programmes. Both have their rightful place without combining them into one service.
Minister of Social Development Carmel Sepuloni describes the rules around minimum wage exemptions as ''discriminatory''. In February, the Minister for Disability Issues announced the Ministry of Social Development, together with the Ministry of Business, Innovation and Employment, would be conducting targeted consultation, with the disability sector on a proposal to replace the Minimum Wage Exemption scheme with a wage supplement.
Hopefully a new wage supplement will bridge that gap. In the meantime: ''Mind the Gap'', people; there's plenty of them out there.
Either we can gap it and just carry on, or take a pause to explore some missing areas that can help avoid plenty of pain.
Jonny Wilkinson is the CEO of Tiaho Trust - Disability A Matter of Perception, a Whangārei based disability advocacy organisation.