The Countdown Kids Hospital Appeal has been launched with a powerful haka from the Whangārei Primary School kapa haka group at the Child Health Centre in Whangārei.
The face of the appeal for 2019 is Northlander Zane Williams, aged 4-and-a-half, who was at the launch to help cut the cake.
Zane is one of five New Zealanders diagnosed with a rare genetic variant that affects how his brain works and because of this he has been diagnosed with global developmental delay, intellectual impairment and autism.
Zane's mother, Nicole Alach, said she first came to the Child Health Centre just after his first birthday when he was still not yet crawling. A blood test revealed the deletion on his 12th chromosome, and from there they have had intense, engaged wrap-around services from the centre.
Alach said it takes more than a village to raise a child with special needs and Zane's therapists have taught him to walk, use a spoon, to play and communicate his basic needs.